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The Indee Rose Trust – A Good Cause

At tonight’s District Council meeting (about which we will write more later) , the new Chair of Council Carole Weston announced that one of her charities this year will be the Indee Rose Trust, based in Canvey , which describes itself as follows:

“The Indee Rose Trust is a charitable trust founded in July 2009. Our aim is to help children and their families who have been diagnosed with a brain or spinal tumour.

We provide Treasure Boxes to children who have been hospitalised whilst receiving treatment for a brain or spinal tumour. A wonderful box of treats created especially for the child. We also provide a one off grant to help the family at this difficult time.”

… Each year Great Ormond Street Hospital are contacted by approximately 500 children with brain and spinal tumours – more than one child each day! With the Help of CLIC Sargent our referall leaflets are offered to these famillies to make contact with us.

We aim to help every child we can with the best presents we can, and to do this we need to raise approx £100,000 a year to give each child a treasure box and provide our grants and holiday accomodation.

Brain tumours are the biggest cancer killer of our children in our country, yet for some reason it only receives approximately 1% of the funding available from the government.

You can find out more about this charity here.

Share the Orange

We shouldn’t accept that dementia is part of ageing  – it’s a disease we can conquer

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The District Council Gives Out Some Grants

The person in charge of giving out grants to non-profit-making organisations and charities is Tory Councillor Simon Smith – however decisions on grants isn’t normally a party political process. In fact Simon had a  small advisory group of councillors from various parties and it was one of the very few meetings where the Tories were not in the majority. As it happens it was a very amicable meeting and you can download the results here.

The Citizens Advice Bureau used to get a large grant but now instead receives funding from the District as part of an advice services contract. The Rayleigh , Rochford and District  Association for  Voluntary Service who act as an umbrella organisation receives a  figure of  £15000, and another £20,000  was shared among  20 other groups, who received between £476  and £1500. Some organisations applied and did not receive anything.

To apply for a grant, there is quite a bit of form-filling to do. The proposed use for the money has to be specified, and the organisations’ financial accounts have to be sent to RDC. The use must benefit residents in our district.

Out of the overall 20 groups, 4 groups received £1500 (the maximum figure you can apply for):

  • 4th  Rochford  Scout Group – towards cost of scout hall extension
  • Old People’s  Welfare  Committee for Rochford and  District – towards purchasing new chairs for day centre.
  • Rochford Bowling Club – towards maintenance of bowling green.
  • Rayleigh Age Concern – to replace the existing toilets at  the Todman Centre.

4 groups applied for slightly less than £1500, but received the full amount they asked for:

  • Carers Choices – £1414 – dementia training sessions
  • Southend Achievement Through Football – £1350 – project in Rochford
  • Rochford District Schools Partnership -£1300 – towards cost of supplying an educational psychologist and a support worker.
  • Equal People Performing Arts (formerly the Mushroom Centre) – £1460 – for 6 conference tables and a projector.

June Lumley

Well Done….

From the District Council website:

After a successful year as Chairman, Councillor June Lumley presented her chosen charities with cheques totalling over £10,000.

Councillor Lumley, who was Rochford District Council’s Chairman for the year 2014/15, held a special ceremony at the Civic Suite, Rayleigh to award Crouch Valley Scouts, Rochford Extended Services, Rochford Older Peoples Welfare Committee, Rochford Community Archive, Rayleigh Through The Looking Glass, Friends of Holy Trinity Rayleigh, Supporting Carers and Families Together (SCAFT), Rayleigh Age Concern and Dolphin Court with cheques from the money she raised from the many fundraising activities she held during her year in office.

After the event Councillor Lumley said: “I am so honoured that I am able to make these donations to charities that are so close to my heart.

“During my time as Chairman I was given the opportunity to meet so many amazing community groups and organisations who deliver vital services, support and activities which go a long way to improving the quality of life for our residents and their families.

“I hope that the money I have raised will go some way to ensuring that these charities can continue offering the community their valuable services”.

RDC picture - Church on Foulness

A Chance To Visit Foulness – But Be Quick !

From the District Council website – a chance to visit one of the most unusual places in Essex:

Rochford District Council, in partnership with the Foulness Conservation and Archaeological Society (FCAS), are offering you the chance to go on a very special tour of Foulness Island.

This is your chance to glimpse some of the wonderful wildlife that inhabits Foulness Island and it also gives you the opportunity to learn about the development of the island as a coastal habitat, how it has been recovered from the sea, farming, natural history and other points of interest.

The guided tractor/trailer tour will take place on Wednesday, 10 June 2015 from 6.30 pm.

Please ensure to book early as spaces are strictly limited and they sell out very quickly.

Tickets are available on a ‘first come, first served’ basis and cost £17 per person with proceeds going to the Chairman of Rochford District Council, Councillor Heather Glynn’s chosen charities.

For more information, or to book your place, please contact Karen Kersley on 01702 318143 or email karen.kersley@rochford.gov.uk

It’s Murder At The Quiz Night!

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(click on the poster to enlarge it)

“Help Tracy Get Back On Her Feet”

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From the fundraising page set up for her:

This is a fundraising page for our amazing Tracy who was a healthy 34 year old Mum of two small boys and was due to run a marathon this year. She was taken into hospital Christmas eve and none of us realised how terribly ill she was with pneumonia, but by Christmas Day she was put in an induced coma. 
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Her life has been saved by amazing doctors more than once after suffering complete organ failure and she has battled through meningitis, septasemia, deadly blood clots and bleeding on the brain. She came out of her coma on new years eve and although still in intensive care at St Thomas’s she has shown amazing strength.  But it is now time for us to our bit.
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The reason and sad reality of our fundraising is that tragically Tracy has lost both feet and her legs have been amputated below the knee as well as her fingers. We are raising money for her rehabilitation and ultimately the best prosthetic feet we can buy. So please, please, please let’s help Tracy get back on her feet.

Help From The Council- And Some More Money Is Still Available For Voluntary Organisations…..

From the Echo:

GRATEFUL volunteers say their free advice service has been saved from closure after it was handed vital funding by their council.Rochford and Rayleigh Citizens Advice Bureau was given £67,000 by Rochford District Council. The council is giving more than £100,000 to voluntary groups across south Essex.
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The CAB helps more than 3,000 people a year. Sue Murray, chief executive of Rochford and Rayleigh CAB, said: “This money will enable us to provide a service. Without that funding and the support of the council, and they really do support us, we wouldn’t be able to provide any advice.”
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Rayleigh, Rochford and District Association for Voluntary Service has been awarded £15,000. June Lumley, its chairman, said: “This grant will allow us to continue to support the hundreds of local volunteers and organisations which make such a difference on a daily basis.”—–
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The funding will help support nine projects in the Rochford district, including buying equipment for disability sports sessions run from Stambridge Memorial Hall.
Rayleigh Age Concern will get some help towards buying a new boiler, while Fairview pre-school, in Rayleigh, will be given cash for a storage shed.
Local Scout and Cub groups will be able to improve their Scout Huts, refurbish toilets, buy a new trailer and waterproof their tents, and Rankins Cricket Club will be buying a new sightscreen.
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More than £7,000 was left unallocated and the council is inviting applications for the remaining funding.
Jo McPherson, Rochford District Council’s councillor responsible for the community, said: “These organisations truly make a difference to the lives of residents.”
If you are a voluntary organisation and would like to apply for funding, contact Andrew Lowing, on 01702 318061 …

Museum Quiz On The 28th !

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How Voluntary Organisations Can Apply For A Grant From The District Council

From the District Council website:

The Council has a small annual budget for grants to voluntary organisations to assist in the delivery of their organisations activities. The grants are normally allocated once a year. Any organisation that has been funded in previous years that does not submit an application will not receive funding.

Please click on the ‘guidance notes’ link below for further information on submitting an application.

All applicants must complete the form located in the Related Documents section and return it with the required financial information (see bottom of form for information) by email or post by Friday 21 November 2014:

Andrew Lowing, Strategic Partnership Officer, Rochford District Council, South Street, Rochford, Essex SS4 1BW or communityplanning@rochford.gov.uk

For further information please contact 01702 318061. If you would like this information in large print, Braille or another language please contact 01702 318111

Charity Quiz Night – October 4th

On Saturday the 4th of October Hayley Bloomfield is holding a Fundraising Quiz Night at Rawreth Village Hall. She has told us:

The Quiz is being held to raise money for my friends son, who at the age of 21 has been diagnosed with three brain tumours, and having now undergone two major brain operations and three rounds of unsuccessful chemotherapy there is no available treatment left for him on the NHS so, we are raising money to pay for Reece to receive private treatment, and a drug that could significantly alter his life.

The quiz starts promptly at 7.30pm, teams can have a maximum of 8 members, and the cost per team member is £13 which includes either a fish and chip, or chicken and chip supper from Peggoty’s.

If you would like to support this event and enter a team please email me ( clerk.rawrethparishcouncil@btinternet.com ) and I can forward an entry form to you.

You may have seen or heard about Reece Hawley in the local press, national press, and on ITV’s “This Morning” Reece lives in Basildon, and until he was diagnosed last year was training to be a teacher, he is one of the most humbling young men I know, and I am truly privileged to be part of his fundraising team.

I hope you can join us on the night, it will be a lot of fun, with a very tried and tested Quiz Master.

Kind Regards
Hayley Bloomfield
Clerk to Rawreth Parish Council

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Here’s just a little bit about Reece.

Reece was a fit healthy young man, when in May 2013 two weeks after his 20th birthday he had a bleed on the brain. He had surgery after which the surgeon advised us that the bleed was caused by an AVM (Arterial Venous Malformation) which was as he thought. It was removed and as far as he was concerned he had cured Reece. 5 days later we received the pathology report which confirmed high grade aggressive malignant brain tumour.
Reece went on to have the standard treatment of 6 weeks daily radio/chemotherapy followed by 6 cycles of chemo Reece flew through the treatment with hardly any side effects and was doing so well, which was confirmed by his first follow up MRI in October 2013, it showed no enhancement or re-occurrence.

Then suddenly Reece had a few strange symptoms hiccups that lasted 2 days, couple of headaches and then felt really strange one day which led to him being hospitalised. Reece was scanned a week early to when his next scheduled scan was due and unfortunately they found two new tumours had grown just outside of the radiation perimeter.

The three different chemo’s used so far haven’t worked which means all treatments that are available on the NHS have now been tried.

We are now looking to fundraise as much as we can to give Reece more options. These would include consultations with Neuro-Oncologists around the world and other methods of treatment. One type of treatment in particular, Avastin, has been recommended by Reece’s Oncologist. Avastin was, up until last year, available and provided by the NHS but unfortunately funding for this was pulled leaving those in Reece’s position no choice but to fund it themselves at approximately £4,000 per cycle every 2 weeks.

Reece has his whole life stretching ahead of him with so many hopes and dreams to fulfil. He is a gentle, friendly, loving and selfless person that will always put others before himself and we are so proud to have him as part of our family. He has promised his girlfriend of nearly 4 years that he will try anything but the unfortunate thing is that it seems no-one has anything much to offer him to try.

Reece is a real inspiration and has said that if his life had to end now he is really grateful for the 21 years that he has already had. His words were that he feels his upbringing was the best and he had been lucky enough to meet the girl of his dreams. This breaks our hearts and makes us feel so helpless, we would do anything within our power to help him.

We understand that not everyone is in the position to spare money but any help that can be provided, including raising awareness of this predicament that those diagnosed with brain tumours find themselves in, is extremely appreciated.
If you would like any further information regarding Reece’s progress or other fundraising events we have going on at the moment please feel free to contact us at reecetumournaterhawley@hotmail.com or follow Reece’s journey through his facebook page ‘Reece Tumournater Hawley’

Cash For Trash

Rayleigh High Street Litter small

 

The District Council has a new initiative. For three months, when people put their litter in a bin in Rayleigh  High Street  they will be helping raise money for local charities….  The new campaign is a partnership between Rochford District Council and Keep Britain Tidy and is being supported by The Wrigley Company.

Each month, a different charity will be given up to £500 and the amount they receive will depend on the amount of litter in the bins. The charities that will benefit from the project are Wyvern Community Transport, The Mushroom Theatre Company and Rayleigh, Rochford and District Association for Voluntary Service (RRAVS).

Full story here.